Rare Disease Day Series: Sotos Syndrome Association Inc.

As part of our Rare Disease Day podcast series, Emily chats with Lisa Rynne, the co-founder of Sotos Syndrome Association, about the rare condition, her experience as a mother of a child with Sotos, and the importance of raising awareness about rare, genetic, and undiagnosed conditions.

 

To learn more about Sotos Syndrome Association Inc, contact info@sotos.org.au.

 

To find out about peer Support Groups in WA, contact ConnectGroups at info@connectgroups.org.au.

 

Music: https://www.purple-planet.com